Cure Sanfilippo Foundation

The Cure Sanfilippo Foundation is a 501(c)3 non-profit organization focused on accelerating scientific development and access to a cure or therapeutic options for all affected by Sanfilippo Syndrome. They fund promising research, projects, and clinical trials, and collaborate with families, researchers, academic institutions, regulators, and biotechnology companies. The foundation also works to drive advocacy to improve care and outcomes, and empower families with information, guidance, and support.